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SNIP : supporting children, young people and families |
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The following links and contacts are for some of the conditions that SNIP most commonly deals with. For more information about any of these conditions, or any that is not listed here, or for information on support groups in your local area, please contact SNIP directly.
Arthritis (juvenile idiopathic)
Arthritis Care. www.arthritiscare.org.uk
Children's Chronic Arthritis Association. www.ccaa.org.uk
The Lady Hoare Trust (note : merged with Contact a Family in 2004). www.cafamily.org.uk/lht.html
Asthma
The National Asthma Campaign. www.asthma.org.uk
Attention Deficit Hyperactivity Disorder (ADHD)
ADD/ADHD Family Support Group UK.
ADDERS. www.adders.org
Children & Adults with Attention Deficit Hyperactivity Disorder. www.chadd.org
National Attention Deficit Disorder Association. www.add.org
Autistic Spectrum Disorders (including Asperger Syndrome)
National Autistic Society. www.nas.org.uk
Scottish Society for Autism. www.autism-in-scotland.org.uk
Brain Tumours
Brain Tumour Action. www.braintumouraction.org.uk
Cancer and Leukaemia
Cancer and Leukaemia in Childhood. www.clic.uk.com
Children's Cancer Web. www.cancerindex.org/ccw/
Cancer Resource. www.cancerresource.co.uk/childrens.htm
Children With Leukaemia . www.leukaemia.org
Leukaemia Busters. www.leukaemiabusters.org.uk/
Cerebral Palsy
Scope. www.scope.org.uk
Capability Scotland. www.capability-scotland.org.uk
Chromosome Disorders
Unique. www.rarechromo.org
Cleft lip / palate
Clapa. www.clapa.com
Club foot / Talipes
Children with Talipes. www.clubfoot.co.uk
Clubfoot Net. www.clubfoot.net
Steps. www.steps-charity.org.uk
Cystic Fibrosis
Cystic Fibrosis Trust. www.cftrust.org.uk
Deafblind
Sense Scotland. www.sensescotland.org.uk
Deafness
National Deaf Children's Society. www.ndcs.org.uk
Diabetes mellitus
Diabetes UK. www.diabetes.org.uk
Down's Syndrome
Down's Syndrome Association. www.downs-syndrome.org.uk
Down's Syndrome Scotland. www.sdsa.org.uk
Down's Heart Group. www.dhg.org.uk
Mosaic Down's Syndrome. www.mosaicdownsyndrome.org
Dyslexia
British Dyslexia Association. (England & Wales only). www.bda-dyslexia.org.uk
Dyslexia Institute. www.dyslexia-inst.org.uk
Lothian & Borders Dyslexia Association. http://mysite.freeserve.com/dyslexiainlothians
Scottish Dyslexia Association. www.dyslexia.scotland.dial.pipex.com
Dyspraxia
Dyspraxia Foundation. www.dyspraxiafoundation.org.uk
Eczema
National Eczema Society. www.eczema.org
Talkeczema. www.talkeczema.com
Epilepsy
British Epilepsy Association. www.epilepsy.org.uk
Enlighten Action for Epilepsy. www.enlighten.org.uk
Epilepsy Association of Scotland. www.epilepsyscotland.org.uk
National Society for Epilepsy. www.epilepsynse.org.uk
Facial Disfigurement
Changing Faces. www.changingfaces.co.uk
Fragile X Syndrome
Fragile X Society. www.fragilex.org.uk
Head Injuries
Children's Head Injury Trust. www.cbituk.org
Headway. www.headway.org.uk
Heart Disorders
Association for Children with Heart Disorders. www.heartchild.info
Children's Heart Federation. www.childrens-heart-fed.org.uk
Children's Heart Unit Fund. www.chuf.org.uk
Heart Link. www.heartlink-glenfield.org.uk
Left Heart Matters. www.lhm.org.uk
Young at Heart. www.youngatheart.org.uk
HIV/AIDS
Children With AIDS Charity. www.cwac.org
Incontinence
Enuresis Resource and Information Centre. www.eric.org.uk
Learning Disability
The Action Group. www.actiongroup.org.uk
Family Advice Information Resource (FAIR).
Enable. www.enable.org.uk
Mencap. www.mencap.org.uk
Meldi : Minority Ethnic Learning Disability Initiative. www.meldi.org
Life Threatening or Terminal Conditions
Association for Children with Life Threatening or Terminal Conditions and their families . www.act.org.uk
REACT : Rapid, Effective, Assistance for Children with Potentially Terminal Illness. www.reactcharity.org
Meningitis
National Meningitis Trust. www.meningitis-trust.org.uk
Meningitis Research Foundation. www.meningitis.org
Mental
Health
Metabolic
Diseases
Muscular
Dystrophy
Muscular Dystrophy Campaign. www.muscular-dystrophy.org
Prematurity
Bliss. www.bliss.org.uk
Speech and
Language Disorders
I-Can. www.ican.org.uk
Spina Bifida
Syndromes Without A Name. www.undiagnosed.org.uk
Visual
Impairment
Look UK. www.look-uk.org
Royal National Institute for the Blind. www.rnib.org.uk
Visual Impairment Scotland. www.viscotland.org.uk
links verified 7 May 2008